Update and continued request

I know how frustrating it can be when the doctors can't figure out what's going on!! Hang in there-prayers from Houston.

Continued prayers from Northern California FBM. We have been thinking and praying for you. Remember in all situations God is in control and he has special plans for all of us even if we don't see them ahead of us.

Jodi

FBM,

More prayers for you from Minnesota. You have been struggling with this for so long, I sure hope you get answers soon, and can feel good again.

Julie

FBM,

You KNOW that you are in my thoughts and prayers. And here is hoping that all God is testing you right now for is your patience and perseverence. I know how frustrated you are at how long this is all taking to find a diagnosis. As you already know, you will continue to be in my thoughts and prayers.

I know you are getting frustrated! Just remember that God will never give you more than you can handle! (Although, I'm sure you feel like you are probably maxed out!) More prayers for you from Texas!

MaryAnn - Thoughts and prayers continue for you!

Thanks all.

Just got back from the pulmonist who indeed has referred me to the infectious disease specialist. That is set up for early next week ... (after the ID doctor's staff wanted to schedule me for early November ... yeah, right. What part of sick don't you understand?) So hopefully last week's bloodwork and an ID specialist and probably more testing will get us going in the right direction. If someone were to tell me "You have xvxvxv and once we start treatment, you should start feeling better in 3 weeks" I would at least believe there was an end in sight. I know you can all understand and I appreciate all your kind thoughts and prayers.

lovethatbaseball ...

I understand what you are saying and I agree wholeheartedly. Reminds of a quote I just read from Mother Teresa ... "I know God won't give me anything I can't handle. I just wish He didn't trust me so much."

Maryann,
I am continuing to send prayers over the hill to you from Chino Hills.

Regina

I am so sorry to hear you're you still ill and I hope you find what's wrong soon.
I know this is a shot in the dark but have you been tested for Lyme Disease? I have many friends in this town who have enumerable health problems which finally, after many many tests and over many years, have finally been diagnosed with Lyme. It is a terrible disease that mimics many things and doctors often dont accept that it may be Lyme.

FBM,...don't stop on us now!!! ( I'm handing you your boot straps so you can start pullin' them up!! ) We GOTTA find out what this is!!!

I too had a mysterious illness ( am now convinced it was due to mold in our military housing! ewwww,..ick ick,..gives me the heebie jeebies just thinking back to those days!!) for about 4 years and was quite desperate. Its no fun. I felt discouraged, frustrated, and depressed on top of all the other symptoms.
NOT A FUN TIME!!! ( had " mommie guilt " too cause I couldn't " be-all-that-I-could-be " for the kids. It seemed like everything was stacking up on me!! Can you relate??? )

I just dont want you to loose HOPE. It sounds like you are on the right track with the infectious disease specialist. I give that move two thumbs up!!

Stay as positive as possible,..I think if you can keep a good positive mental perspective on things it can only help. Not sure what you need to keep you in the sunshine emotionally,..but we are here for you!!! Make sure you continue to focus on the things that make you smile!!

Sending you big hugzzzzz,....some sunrays,...hope,..and by golly,..we're not gonna let you get down!!! Heres your official " Pick-me-Up " balloons. ( just kinda pretend they were delivered to your door! tee- hee )



Thinking of youuuuu!!!!!!

MaryAnn, please know you have my prayers and wishes for your good health.

Prayers and thoughts continue FBM ... collectively we'll get this thing whipped

Jeepers FBM, I'm sorry to read this. Sending you prayers and healing from So. Cal. I hope the physicians will identify the source and find a quick and efficient solution.

Whatever is going on, you know you'll find support, distraction, and more here. Come for the excitement..stay for the love. I hope you're doing good things for yourself today and tomorrow and whenever. Stay strong and find a reason to laugh.

Cheers and prayers from San Francisco

Sometimes not knowing what's wrong is worse than knowing. I've never been known for may patience. It must be terrible waiting for the tests and their results. Hang in there! Keep your chin up! That's what mom's are known for. We're all pulling for you out here.

Sending prayers and best wishes from Mass! I too know how frustrating it is to not have a diaganosis. Sounds like you are on the right track to finding some answers ...hang in there!

FutureBack.Mom,I really hope you feel better soon! My family all had a cough that no doctor could diagnose. I had been so sick I went to the ER and than a pulmonary doctor. I did some research on the internet and asked the pediatrician if we could possibly have whooping cough. She ran some tests on one of my sons and sure enough we had whooping cough in the house!!!!! Everyone of my children had the vaccine so no one looked for it. We were quarantined for 5 days...everyone of us had to be on antibiotics. I was the sickest and from months of coughing had broken a rib as well. So I am glad you are getting to see the ID doctor and hopefully he can come up with an answer...By the way my pulmonary doc felt so bad because he missed it this time !LOL

Prayers continue from Texas. I went through an undiagnosed mystery illness years ago and will never forget how FRUSTRATING it was. I've had several friends and relatives go through the same thing...relentless physical symptoms with no clear diagnosis. In all of our cases, time seemed to be the cure.

Hang in there. You're getting closer! God knows what's going on. Listen for His direction and keep the faith!

Sending you our positive energy and postive thoughts from NorCal. And speaking as an RN, my advice is to be aggressive about calling for lab results, answers to questions, and scheduling appointments. The squeaky wheel does get the grease.

FutureBackMom,....its been about 10 days since you posted here,..time for us to check in on you!!

How ya doin'??

Thinking about ya,..stop in and prop your feet up and let us know how things are when you feel up to it!

Hugggzzzzzzz

Feeling a bit better these days ... haven't had a fever in over a week so that is good news. Still no energy at all and get very short-winded just walking down the hall or taking a shower.

Had a bunch of bloodwork done on Tuesday, testing for various things, one of which is Valley Fever. White count is up higher than 2 previous tests and one of blood cultures already came back positive but for what, am not yet sure. New infectious disease specialist is being very aggressive with my tests and x-rays (even reviewed my films on her day off) and I will be seeing her again on Tuesday.

Guess I didn't post when this happened but last Sunday, I cracked a rib during a coughing spell. I had to call my son to take me to ER ... and here my hubby thought it was safe to take a few days off his care-giving to go fishing, only to have to turn around and come home to help me until I could maneuver on my own. I can honestly say that it was easier to give birth to an 8 lb 12 ounce boy, without meds, than to deal with that rib fracture ... "On a scale of 1 to 10," asked the nurse, "what is your pain level?" Wincing, I answered, "FOURTEEN !!!" I slept most of Sunday from the heavy duty pain shot they gave me but I could not get along by myself ... couldn't even get out of my recliner without help. Have had to sleep in the recliner every night since then because I can't get comfortable while lying flat in bed.

Rib has improved quite a bit and I was able to send hubby back up to the trout streams with his fishing buddies on Thursday. Unfortunately, he is still 'on call' as the ID specialist was ready to send me to the hospital when my first blood culture came back positive. If I had still been running a fever, I would be typing this with an IV in my arm at the local hospital. Hopefully hubby will have a chance to finish his trip without a medical emergency from me again.

Will get the results on most of the tests this coming Tuesday ... Valley Fever results may take longer as the specimen was sent out of town to a lab at UC Davis med school. Hopefully we can get this thing identified and I can consider actually having some holiday time this year.

quote:

Feeling a bit better these days ... haven't had a fever in over a week so that is good news.

That is good news but.... ouch... a cracked rib!!!

FBM... my thoughts and prayers continue...

You have been suffering terribly and deserve even more good news. Here is a positive thought for you. When you see your son pitch in the big leagues someday, this trial will all be but a memory.

fbm, more thoughts & prayers from ne ohio


.

FBM -

Good to hear the fever is gone and the doctor is being aggressive and determined to get answers!

Sending good thoughts and prayers for a speedy recovery!

FBM:

& a little

.....just for you!!!